Brave internet star Brooke Eby who spoke candidly about her heartbreaking struggle with debilitating ALS dies aged 37 as emotional tributes pour in
Brooke Eby, a social media personality who spoke openly about living with amyotrophic lateral sclerosis (ALS), has died aged 37. The ALS Network said her honesty, humour and determination helped change how many people understood the condition.
Diagnosed at 33, Eby shared her experience online as ALS progressed and built a following of hundreds of thousands on TikTok and Instagram. The network said millions encountered her posts, which combined candid accounts of life with the disease, challenges to misconceptions and humour.
- Brooke Eby has died aged 37.
- She shared her experience of ALS online.
- Her candid posts reached millions.
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Amyotrophic lateral sclerosis (ALS) is a rare disease in which the nerve cells controlling muscles gradually stop working, causing increasing weakness that affects a person's ability to move, speak and breathe. There is currently no cure.
Brooke Eby was a social media personality who became known for sharing her life with ALS online. Diagnosed with the condition at age 33, she built a large following on platforms like TikTok and Instagram by posting candid updates about her experience.
Her posts reached millions of people and combined honest accounts of her struggles with humour and corrections to common misunderstandings about ALS. Her openness helped change how people understood the condition and what it means to live with it.